Jogos

kid in vr talks about living with rare disease

Cool kid in VRchat explains what life is like with the "butterfly disease"
If you want to help support the channel check out the merch store at loveisdoor.com/ and patreon www.patreon.com/syrmor
▼ Find me on ▼
★ Twitch: www.twitch.tv/Syrmor
★ Twitter: twitter.com/SyrmorS
★ Instagram: instagram.com/Syrmor
★ Discord: discord.gg/Syrmor
Music:
Outgoing Hikikomori - Sweet Melancholy
Lateeya - Lullaby cover by Randy Gapasin
Bees - Loebach Music
Outgoing Hikikomori - The Birthday Party I Never Had
Sundown - Loebach Music
Aaron recommended this source to learn more about Epidermolysis Bullosa: www.webmd.com/skin-problems-and-treatments/epidermolysis-bullosa-what-is
Aaron's stream: www.twitch.tv/thatgeekaaron

Comentários

  1. Syrmor

    Syrmor

    2 meses atrás

    If you wanna go say hi to Aaron or have more questions for him you can watch him stream at www.twitch.tv/thatgeekaaron Keep up with the channel at twitter.com/SyrmorS and instagram.com/syrmor/

    • The Good Boi

      The Good Boi

      Dia atrás

      +Dwayne cmon man not now

    • Mike Myers

      Mike Myers

      3 dias atrás

      I cried throughout the whole video

    • gisadodpapa

      gisadodpapa

      4 dias atrás

      Are there any legit charities or donations that go towards funding research for the development of new treatments for this?

    • Google Translate sings

      Google Translate sings

      26 dias atrás

      thanks for making these videos cause they show me how lucky i am in the state im already in, cuz if this kid cant even get hugged or wiggle his fingers i cant complain for some things, i might just stay strong cause i have only 1 parent (in my household) so things are already hard on me so i should just be grateful that im not homeless or have a rare disease, such as the butterfly disease, i do have athsa and exsma but now i see your videos its harder for me to complain no more, some youtubers talk about mental health but you get people who have been through some sh|t that are strong enough to talk about this, this hits my heart man these videos are nice and i really enjoy watching them when im down, i try to be a funny guy, but when i am sad have have bad thoughts your videos just help me have good thoughts and be thankful for what i have, love these vids dude, keep making them please. we pray for you.

    • Kurerando

      Kurerando

      29 dias atrás

      Breaks my fucking heart

  2. JR

    JR

    16 minutos atrás

    It's conditions like this that convince me that there isn't a God, but it's the attitudes of Aaron, his dad, and his little girl crush that prove to me that we don't need him.

  3. Ian C

    Ian C

    32 minutos atrás

    Speaking of chopsticks this BR-channelr William Osman made automatic chopsticks. Ok that's all cya

  4. Dank Lambsta

    Dank Lambsta

    Hora atrás

    7:27

  5. Backyard_Assassin

    Backyard_Assassin

    Hora atrás

    7:00 reminds me of forest Gump the lonely kid getting one pretty girl that likes him

  6. jtman2012

    jtman2012

    2 horas atrás

    Aaron will be a great man some day.

  7. percy thehero

    percy thehero

    2 horas atrás

    Aaron is so cooolll

  8. EMC Animations

    EMC Animations

    3 horas atrás

    I’m emotionally moved

  9. [GD] RainbowBunny

    [GD] RainbowBunny

    3 horas atrás

    these videos are heartwarming

  10. hash slinging slasher booty gang captain

    hash slinging slasher booty gang captain

    3 horas atrás

    There is a kid who has the same skin condition that is going to the hospital almost everyday to create a cure for this disease

  11. Ex

    Ex

    3 horas atrás

    Praise 6:30 Screw 6:18 through 6;30

  12. F34R PLAYZ

    F34R PLAYZ

    4 horas atrás

    Enjoy it while you can you r a young God

  13. Super Saiyan Kermit

    Super Saiyan Kermit

    4 horas atrás

    he play fortnite now and he very good i love his streams

  14. GLORY TO ARSTOTZKA!!

    GLORY TO ARSTOTZKA!!

    4 horas atrás

    It’s sad that something as simple as taking a shower hurts, we are lucky for small things

  15. meme review

    meme review

    5 horas atrás

    Bruh you dont link him that's I'm sorry a ass move you should put him in desc I'm sorry but that's fricked up

  16. Yi'en Liu

    Yi'en Liu

    5 horas atrás

    idk if a fork would beat a chopstick cuz I''m pretty sure chopsticks are more deadly.

  17. Bribrigamer 1234

    Bribrigamer 1234

    6 horas atrás

    the story with the girl is kinda like Wonder

  18. Bonarrow

    Bonarrow

    6 horas atrás

    Damn this is heavy. All the Best kid😊.

  19. Ben Dover

    Ben Dover

    6 horas atrás

    This is so unfortunate but I love how he is always so positive * I cried

  20. Ian The Asshole

    Ian The Asshole

    6 horas atrás

    WHO THE FUCK DISLIKED THIS ILL FUCKING KILL YOU

  21. Holly Hood

    Holly Hood

    6 horas atrás

    💔

  22. Mario Magic

    Mario Magic

    6 horas atrás

    then how did you get your headset on??

  23. Joackim Gj

    Joackim Gj

    6 horas atrás

    its so sad, but also really beutiful

  24. Dank Memer

    Dank Memer

    7 horas atrás

    I used to be best friends with Aaron, we met online but sort of drifted apart, I still have him as a friend on discord and I've called with him many times before I saw this video. I searched him on youtube and realised he has almost 20k subscribers, me, him and a few other people used to play Minecraft quite a lot together, we used to hop into group calls and mess around. I miss you, Aaron.

  25. -The Eel-

    -The Eel-

    8 horas atrás

    When I saw this I was deeply stuck by the pain that probably everyone got. It's hard to have something to keep you from doing things in life. And it's something I think people like who spit and flipped him off, needs to realize. We are all different and have different lives but you can't just look at someone from your own point of view and go, "Oh hey you can't do much of anything, weak!" Aaron, is strong and determined in my eyes because if I had that, I don't think I would have made it. Things like this both make me tear up, and want me to do better in life because i'm also struggling with stress and anxiety at the moment. When I see things like this, I want to strive to do the best I can and do what I love most, which is art. I think everyone is a piece of art, almost alike but not every art piece is exactly the same unless photocopied. But I went the his channel and followed him for some support! Do good, die great!

  26. ChaseXO

    ChaseXO

    8 horas atrás

    his characters face makes it even more sad :(

  27. Chxrry Cola

    Chxrry Cola

    9 horas atrás

    This made me cry ;-;

  28. hatched tundra7

    hatched tundra7

    9 horas atrás

    Whinnie the pooh eating his shirt

  29. Sushi Dumpling

    Sushi Dumpling

    9 horas atrás

    O shi- I didn't realize who he was I didn't see his name but when I did I freaked out.

  30. AquaOctoZombie

    AquaOctoZombie

    10 horas atrás

    I almost cried when his dad was talking about how proud he was of Aaron. What a lovely family and I can’t wait to see Aaron grow!

  31. Lexi Rene

    Lexi Rene

    10 horas atrás

    I literally cried.

  32. Black_Leopard

    Black_Leopard

    10 horas atrás

    I should probably stop complaining about my health problems

  33. littlebigjace

    littlebigjace

    12 horas atrás

    This really makes you realize how lucky we are that you don’t fear to lose your own fingers like holy crap. I hope Aron can make it big in the twitch world. We all think your great Aron!

  34. Alex Garcia

    Alex Garcia

    13 horas atrás

    i want to know about the delusions of just toms xD

    • Alex Garcia

      Alex Garcia

      11 horas atrás

      +Syrmor The delusions of Just Toms by Symor. where can i buy the book

    • Syrmor

      Syrmor

      12 horas atrás

      People think they do but they dont

  35. cosmic

    cosmic

    13 horas atrás

    as if my heart hadn’t melted enough already, when he said he was excited to get animal crossing i broke

  36. EarlFromPh YT

    EarlFromPh YT

    13 horas atrás

    Lol cant even hit someone in fortnite and this kid is one hitting everyone with a scarred finger

  37. Jeffrey L

    Jeffrey L

    16 horas atrás

    im sorry to be this one in the comments but i killed him in fortnite a hour ago, and didnt realize it was him now i fell bad cause i emoted also.....

  38. Sneeryliam

    Sneeryliam

    16 horas atrás

    dude i saw the this guy on fortnite montage im so happy u talked to him and make him feel better

  39. Dvddy Matt

    Dvddy Matt

    18 horas atrás

    i cried i love this kid

  40. Henry Swain

    Henry Swain

    19 horas atrás

    You are a normal person who has a condition 😢

  41. Corneredkidtv

    Corneredkidtv

    22 horas atrás

    Waiting for this kid to stream so I can drop him a 500$ donation

  42. Charlotte Cousineau

    Charlotte Cousineau

    23 horas atrás

    HOW DOES HE FIND THESE PEOPLE

  43. Joki Boki

    Joki Boki

    Dia atrás

    does his vr mask hurt to put it on?

  44. _chocopuffle_

    _chocopuffle_

    Dia atrás

    rare diseases can suck.. i feel bad for this kid

  45. jungkook’s shirts in dna mv

    jungkook’s shirts in dna mv

    Dia atrás

    Makes you appreciate your life a lot more.

  46. Evan Rain

    Evan Rain

    Dia atrás

    "never let anything stop you" *is stuck in table*

  47. John Barrett

    John Barrett

    Dia atrás

    It’s ok I can’t use chopsticks either

  48. Ben

    Ben

    Dia atrás

    This is the most depressing arse channel I’ve ever fucking seen

  49. Sophie Brewer

    Sophie Brewer

    Dia atrás

    My little sister has the same condition and ever one thinks that she was in a fire

  50. DreNerD 510

    DreNerD 510

    Dia atrás

    damn, its sad that u get nervouse for taking a shower. i cant imagine

  51. grim g

    grim g

    Dia atrás

    My mates call me the tfue of console but watching him play is crazy

  52. Prophedeus Nvt

    Prophedeus Nvt

    Dia atrás

    a very nice vid indeed heart warming, honest and educational at the same time loved it thumps up for the dad and the kid and of course for this vid

  53. Emersed Milkk

    Emersed Milkk

    Dia atrás

    9:12 imagine being that bad but also that lucky

  54. Cammy 02j

    Cammy 02j

    Dia atrás

    I knew someone who had this but haven't seen them for like 9 years

  55. Gacha dark

    Gacha dark

    Dia atrás

    Imagine falling over with this disease the pain would be unbearable

  56. Nissa Boo

    Nissa Boo

    Dia atrás

    Aw this is so cute

  57. hierarky

    hierarky

    Dia atrás

    6:30 dang that’s wonder irl

  58. Brayan Leon

    Brayan Leon

    Dia atrás

    It’s not cool how people bullying him it’s really fucking sad that people actually thinks he’s discussing I don’t see really how kids are now and days

  59. Acid Dragon

    Acid Dragon

    Dia atrás

    F

  60. trick-shot god

    trick-shot god

    Dia atrás

    To the five hundred people who disliked this video I hope you break both your arms

  61. Golf Boi

    Golf Boi

    Dia atrás

    Bro this kid plays fortnite better than me and he uses his feet

  62. crazy savage gamer

    crazy savage gamer

    Dia atrás

    I think he is the guy with no hands that flays fortnite

  63. Dank Man

    Dank Man

    Dia atrás

    His name is a fortnite streamer

  64. ChrisPC

    ChrisPC

    Dia atrás

    I wanna cry

  65. 2Big

    2Big

    Dia atrás

    He talking bout bad skin while I’m here with bad acne, bruh I feel bad for this kid because his skin hurts him. 🙏🏻🙏🏻

  66. MeetTheGamingPenguin

    MeetTheGamingPenguin

    Dia atrás

    DUDE I NEVER KNEW THIS KID PLAYS VRCHAT CUZ I KNOW HE PLAYS FORTNITE BUT I NEVER KNEW HE PLAYS VRCHAT

  67. Fr33dom r3ck

    Fr33dom r3ck

    Dia atrás

    Poor kid, just wish him all the best

  68. Qwerty is a thing

    Qwerty is a thing

    Dia atrás

    Why can't I fucking cry

  69. Justin Knight

    Justin Knight

    Dia atrás

    This is great. This is making me cry.

  70. x X x

    x X x

    Dia atrás

    Burn it pls

  71. Jesus Christ

    Jesus Christ

    2 dias atrás

    Damn this dude probably won’t be able to have sex when he grows up

  72. Knight Sky

    Knight Sky

    2 dias atrás

    Seen him in clips he's really good

  73. Audri Hayslip

    Audri Hayslip

    2 dias atrás

    I started to cry my friend had this disease

  74. Ej Nick

    Ej Nick

    2 dias atrás

    I was so surprise when I realized it was my favorite twitch streamer

  75. Rune

    Rune

    2 dias atrás

    He's so intelligent and articulate.

  76. Andrew Boiling

    Andrew Boiling

    2 dias atrás

    i hope the people who disliked this get arrested

  77. Caoimhin Niall

    Caoimhin Niall

    2 dias atrás

    Why am I doing this to myself, not like I an emotionally stable person anyway. Just watched the young guy talking about losing his girlfriend to cancer, and then I just jump right on to this young lad's story. But I will say when people talk about cool, and they reference the way people dress or look, or the things they do. That to me is fine and everything, but to me this young man is cool. He does not let anything get him down for too long, and despite the challenges he faces. He keeps on going hard at life, doing the the things he wants to do. That to me is cool, and a testament to the human spirit. I hope he gets everything he needs, and to do the things he wants to do.

  78. Xcellex __

    Xcellex __

    2 dias atrás

    You 500 people who disliked the video are stupid he is struggling he needs help

  79. AsTrO b0t

    AsTrO b0t

    2 dias atrás

    GL Aaron dont let the disease stop you

  80. HairyLongLeg *

    HairyLongLeg *

    2 dias atrás

    My uncles sister had a daughter which had this disease and she died only a few months ago at 11

  81. Mental Taurtis

    Mental Taurtis

    2 dias atrás

    What's this troopers twitch name?

    • Suprxme

      Suprxme

      2 horas atrás

      Mental Taurtis thatgeekarron

  82. w i l l l

    w i l l l

    2 dias atrás

    Next time he goes live I’m gonna donate

  83. Frokyo

    Frokyo

    2 dias atrás

    DAD OF THE YEAR AWARD GOES TO...

  84. Mickey

    Mickey

    2 dias atrás

    He’s a fortnite streamer

  85. Suzanne McArthur

    Suzanne McArthur

    2 dias atrás

    *OOF*

  86. Diego Bernal

    Diego Bernal

    2 dias atrás

    Fork winning against chopsticks is debatable

  87. Epic Content

    Epic Content

    2 dias atrás

    This is one of the saddest vrchat channels

  88. W key joke

    W key joke

    3 dias atrás

    He actually is a steamer now

  89. justin kenny

    justin kenny

    3 dias atrás

    I wanna be this kids friend!!!

  90. Ella Veysel

    Ella Veysel

    3 dias atrás

    I think I started to cry when he said that his dad was so strong that he could lift a plane ("and other stuff"). Because we can still see just how young and sweet he is and what he's going through is so tough but he's just come so far and seems to be happy playing video games and streaming.

  91. Everyday lpscats

    Everyday lpscats

    3 dias atrás

    My eyes are water falls

  92. Sôtei-gaku

    Sôtei-gaku

    3 dias atrás

    Why did 500 people dislike this video?

  93. Razor _Wolf

    Razor _Wolf

    3 dias atrás

    I watch his twitch streams and If I met him in real life I'd give him a gentle fist bump and do the explosion when are hands aren't touching do that he could experience it without being hurt

  94. Greighp

    Greighp

    3 dias atrás

    these videos are so wholesome i love them

  95. Diced

    Diced

    3 dias atrás

    poor lad

  96. Bhq

    Bhq

    3 dias atrás

    this kid is probably lying

  97. RobloxGamer Jarrod

    RobloxGamer Jarrod

    3 dias atrás

    i really feel sad for this boy the horrible things he is going through i would wanna be his friend if i knew him

  98. Lachlan Turner

    Lachlan Turner

    3 dias atrás

    Bloody rebel dude bloody rebel

  99. Leader LT

    Leader LT

    3 dias atrás

    I feel like I had something similar like 3 years ago when I was 15

    • Leader LT

      Leader LT

      3 dias atrás

      This got only my arms and my legs

  100. Luke Berrie

    Luke Berrie

    3 dias atrás

    Shoutout to dads. They’re fucking awesome.

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